Dear Purple Butterflies,
If you’re anything like me, you’re probably sick of going to doctors’ appointments, blood tests, taking medications, etc. As much as I hate to say it, for those with chronic illnesses, it just comes with the territory. I have recently found a brand-new rheumatologist to help me with my Fibro symptoms. My appointment won’t be till September. Until then, I am doing lots of internet homework to prepare for said visit. For instance, I believe I have found an actual name for my twitches and spasms that I get daily. I am anxious to see if my new doctor agrees with any of the information that I found.
I am currently being treated by my Pain Management doctor for my arthritis in my neck and right arm pain. I have been given medication, at home physical therapy, and two rounds of neck injections. Let me tell you that I trust my Pain Management doctor completely. Still I’m thinking that I need a second opinion. Which is where the new Rheumatologist would come in. This is where I got the idea for a new blog. I could share all my tips and tricks that I’ve learned about finding the best doctor. As my adventure continues, I will update this blog. This list is a mixture of my own recommendation and ideas I found from www.creakyjoints.org.
Now that you’ve found a doctor what seems awesome, do a little research on his or her background. Go to their actual medical website and look around. Look at his or her reviews. Call around to your doctors and ask if they have heard of the doctor you’re thinking of seeing. Get their opinion.
Sometimes our insurances don’t want to cooperate with the doctors we want to see. I have been there many times. In times like these it makes you want to pull your hair out, right? Before you do that, try taking a few days off from your search. Then look to see who you can go to that your insurance company will accept! If you don’t have insurance, make sure to tell the doctors office. It has been my experience here within the States that you can receive a discount on your bill. This may or may not apply to other countries. Please ask before assuming they will give you a discount!
Some of the advice from 9 Signs You’re Seeing the Right Rheumatologist (and 5 Signs You Might Need a New One) includes:
If you’ve been following me for a while, you know all about my botched plantar fasciitis surgery. I made the mistake of not getting a second opinion. I was sure fooled into thinking that doctor knew what he was doing. I have moved on with my life always reminding myself to never let that happen again.
My first instinct is to look for someone who is the same sex as I am. Most of the time I find it’s easier to talk to a lady doctor about what I am going though, than a man. It’s not that my male doctors don’t listen. I feel more comfortable talking to another female about my time of the month, than I would to a man.
On a personal level, this is especially important for me because my physicians aren’t always in the same hospital network.
I know I am not alone when I say that being able to see my doctor as soon as I can is definitely a plus! When offices can do this for me, it not only shows me how much they care but, it reassures me I am not just a faceless number,
It goes without saying, I hope I will be with this new doctor for a long time. Once I find a good one, I hang on with a vice grip. I’d love to know of your experiences. Do you know of any ideas that I failed to mention? Let me know in the comments below. Please continue to stay safe purple butterflies! Thank you for taking the time to read my blog today! If you’re enjoying my blogs, why not subscribe to my website? My blogs will go straight to your email. It’s free to sign up! Tell your friends! Tell your friends to tell their friends!
Dear Purple Butterflies,
I have been a Star Wars fan ever since I was very young. Immediately I was intrigued with the force, and I wanted to be Princess Leia for a couple of reasons, one of them being so I could marry Han Solo. If you’re like me, and have been paying attention, you know the Obi-Wan Kenobi series comes out this Friday on Disney Plus. I have been anticipating this show for a long time now. It’s very exciting! Did you know that it’s the forty-fifth anniversary of the fourth installment, A New Hope? To celebrate both things, I have come up with a list combining Fibro and Star Wars. Without further ado, here is what I came up with for my list!
6 ways Star Wars has helped us with Fibromyalgia
I hope ya’ll enjoyed my Star Wars themed Fibromyalgia blog and it helped you think of things in a fun way. Did you think of anything from the trilogy that could also be applied to Fibro? I’d love to know your thoughts! As always, please continue to stay safe purple butterflies! Thank you for taking the time to read my blog today! If you’re enjoying my blogs, why not subscribe to my website? My blogs will go straight to your email. It’s free to sign up! Tell your friends! Tell your friends to tell their friends!
Dear Purple Butterflies,
This is an updated post from an article that I wrote to spread NATIONAL FIBROMYALGIA AWARENESS DAY information a year ago. I liked it so much that, I am reposting it with revisions from other articles I posted for the occasion. Every May 12th, I look forward to showing my support for Fibromyalgia. Participants world-wide on this day will be raising awareness for this chronic and disguised condition by hosting multiple events. Fibromyalgia Awareness Day has been around since 1998. It all came to be when Lynne Matallanax and Karen Lee Richards (the founders of the National Fibromyalgia Association), sent packets of information to national support groups inquiring help to approach U.S political leaders for this invisible illness. Lynne was finally able to get The Los Angeles County Board of Supervisors to recognize May 12th as Fibromyalgia Awareness Day! Not long after, roughly twenty-five other jurisdictions across the country followed suit. What’s so cool about this story is that this year, National Fibromyalgia Day just celebrated it’s twenty-fourth anniversary! Another article you might find helpful is Mystery of Fibro History, posted from last year as well.
If you’re curious and would like to know more about FMS, the following snippet is from the National Fibromyalgia Awareness Day - May 12, 2022 article. “Fibromyalgia is a musculoskeletal disorder that causes chronic pain all over the body. Other symptoms also include fatigue, anxiety, migraines, irritable bowel syndrome, skin sensitivity, insomnia, numbness, stiffness, etc. People suffering from fibromyalgia either go undiagnosed for years or are misdiagnosed. Due to a lack of research and the difficulty in identifying the factors that cause the illness, many also believe that the disease is psychological and not real. Moreover, there is no permanent cure to relieve the sufferer.”
According to The Mayo Clinic, “Fibromyalgia pain is not the same in everyone with this disorder. Some people may have extreme skin sensitivity to gentle pressure. Some may have tender finger joints without redness or swelling. Others may have significant tenderness of the muscles of the upper back and neck.” Have you ever wondered what is the latest news between Fibromyalgia and the autoimmune system? To read my blog about this, click Mindful Monday#61: Do you know Fibro?
What will you be doing to help raise Fibromyalgia Awareness this year? Most of you might be familiar with this site: Fibromyalgiapatienteducation.info. This is a great reference to have if you’re wanting information. Or maybe you’re having trouble thinking of ideas on what to do for May 12. For my birthday this year (May 8th) I will choose to support Fibromyalgia research. I’ll have a link to the charity on Facebook.
Hopefully my blog has given you some inspiration for May 12th. Remember this butterflies, you don’t have to scream to be heard, and even the smallest star can be seen from across the universe. I’ll leave you this week with this awesome quote: “You may encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it.” – Maya Angelou.
I pray that everyone is staying safe. Thank you for taking the time to read my blog today! If you’re enjoying my blogs, why not subscribe to my website? My blogs will go straight to your email. It’s free to sign up! Tell your friends! Tell your friends to tell their friends!
Till next time!
Dear Purple Butterflies,
During the month of April, there are two wonderful awareness days that we all can relate to. One is the Stress Awareness Month that takes place throughout the entire month of April. Personally, I have never met anyone who hasn’t had their own experiences with stress. Why do we need to observe this day?
With all these suggestions, I can’t help but think about my fellow warriors, myself included, who battle insomnia. The idea of getting a decent night’s sleep can be almost laughable. The truth is, it’s not a joke. I don’t have to tell you that having insomnia can make the following day miserable. I would love to tell you that I sleep soundly every single night. I would be lying to you if I did. Here is a helpful website that has a listing of resources to help with stress and suicide: American Foundation for Suicide Prevention.
To combat the stress awareness month, is an annual, fun event which is National Wear Your PJ's To Work Day. In case you were wondering, this day is on April 16th. Since I am my own boss and work from home, every day is national wear you pj’s to workday. Most days I do not get out of my pj’s unless I must. Obviously, it was created to enjoy yourself and have fun. Taking a step back, to breathe and having a comfortable workday can be so beneficial to all of us. So why not this year, take advantage and try spreading awareness about this day?
Here are my ideas on how to observe it:
I realize some of these ideas may not work for every job. At least I hope I have given you some thoughts to work with. Now that you know more about these two awareness days, I hope you join me in adding them to my personal calendar. As I end my blog, I’ll save the best for last. While perusing through another website, I came upon Madalyn Worley | Mental Health America of Greater Dallas. World Sleep Day was last month on March 18th. Even though this observance day is technically over with, I carry its message with me all throughout the year. I have always been proud to be a Texan. After we moved back from Florida, I was reminded how lucky we were to be in a state of well-educated and caring professionals. As someone who battles stress, they have my support more now than ever!
If you are not able to do one of the activities or challenges, spread the world by posting about it on social media! I will be making that my goal! As always, I’d love to hear your stories in the comments below! Please continue to stay safe purple butterflies! Thank you for taking the time to read my blog today! If you’re enjoying my blogs, why not subscribe to my website? My blogs will go straight to your email. It’s free to sign up! Tell your friends! Tell your friends to tell their friends!Be well!
Hey there purple butterflies!
Do your feet dance to a different beat? Can you properly take care of your toes? Are you wearing the proper shoes? The topic of the day is shoes. Can you imagine having chronic pain but not having any shoes? A lot of times we take the simple things we own for granted. In addition to my Fibro, I suffer from plantar fasciitis in both of my feet.
What is National Shoe the World Day?
In the United States, on March 15th, it’s National Shoe the World Day. “According to various principles, clothes come under the list of five things required to exist. But in a world where poverty and homelessness are one of the biggest problems having proper dresses seems like a far-fetched dream to some. Humans all over the world live in a world that would sound impossible or unimaginable to us. From walking barefoot on hard, warm rocks to walking barefoot in jungles, all of this leaves people in considerable pain, not to mention the health risk that it follows. Walking without covering your feet can lead to a lifetime of problems, including injury, cuts, infections, parasites, etc.
Therefore, in these interests, a person with the name of Donald Zsemonadi and a company based in Fontana, California United Indigenous People, inspired National Shoe the World Day in March of 2014. However, the Registrar at National Day Calendar declared the observance to be March 15th, annually.” (National Shoe the World Day). I like to support causes to pay it forward. Just like I would love for another person to support Fibromyalgia awareness.
I started having foot problems when I worked at Walt Disney World and ignored them. I stood all day long. On top of that, I would go into the parks to play before my shift, after, and especially on my days off. This meant I was doing an incredible amount of walking. I was losing weight like crazy, but it wasn’t doing wonders for my feet. I recall that I did try to soak my feet, as well as take Advil to help eliminate the pain. When I wasn’t getting any better, I went to find a Podiatrist. Only to find out a couple of years later that the doctor I had chosen was not a good practicing doctor. In fact, I blame myself because I did not do the proper research beforehand. I was just in so much pain, and I wanted it to stop. Now after permanent damage in my left foot from a botched surgery, the medical boards are coming out and saying surgery isn’t the best way to help plantar fasciitis pain. I was very angry for a long time. As they say, if I’d had known now what I knew then I would have made a lot of changes. Once again, it’s being able to blog about my experience that enables me to move on. Years ago, I couldn’t do that. I hope that someone reading my story can learn from my mistakes.
One of the ways you can raise awareness for National Shoe the World Day is to donate your old shoes! Another way is to go on social media and start a discussion on how not wearing shoes can lead to injuries or infections. Remember to use the hashtags #souls4shoes or #Nationalshowtheworldday on your social media pages. Let me know if you do or get some shoes!
Please let me know in the comments down below! Just like every week, I’d love to hear back from y’all! Please continue to stay safe purple butterflies! Thank you for taking the time to read my blog today! If you’re enjoying my blogs, why not subscribe to my website? My blogs will go straight to your email. It’s free to sign up! Tell your friends! Tell your friends to tell their friends!
#Nationalshoetheworldday2022 #keepingyourfeetsweet #souls4shoes
Hey purple butterflies!
We all need love and appreciation to coexist in this upside-down world. Valentine’s Day is celebrated on February 14th which means it’s next Monday! Are the plans with your loved one up in the air due to limited places to go? Maybe you’re flying solo? Either way, this day is the perfect excuse to pamper yourself. Don’t forget, there is always the option of a virtual hang out with friends for the day! My husband and I are both romantics at heart! What’s Valentine’s Day without music? My place to find tunes are on my iTunes Store or Spotify. Whatever your plans are, I hope you fill one of your spoons with love for yourself!
22 Heart Beats:
Till next time! Be well!
#spoonievalentinesday #valentinesday2022 #fibropositivity
About the author:
Rachel Barclift, has been suffering from Fibromyalgia for many years. She went to the doctor, never finding any answers for years. She went to one doctor who told her the pain was all in her head. In 2011, she finally found a doctor that believed her! She was officially diagnosed by her rheumatologist and she was so relieved! She writes blogs in hopes to help others find positivity.