Dear Purple Butterflies,
Are you like me and have had multiple health tests, surgeries, or hospital stays? As a parting gift from those visits, you are left with scars. Did you ever conflict self-harm upon yourself and know you want to cover it up? Are your clothes able to hide your scars? Have you ever wondered what you could do about all of this? Ever since my teenage years I have been poked, prodded, and had more hospital visits than I care to remember. However, I never had any scars because of them until recently. After last surgery, my doctor advised me about one idea. Most recently it was my husband who found an interesting link for me to check out. Consider cocoa butter or shea butter: Do you regularly apply lotion to your skin? I love buying lotion from Bath and Body Works! I feel just like a kid in a candy store again walking into their store. I want one of just about everything. Sadly, I could not find a product on their site that had pure cocoa. The lotion was always mixed with something else, and I am hesitant to try it. I am a pale skinned female so naturally any dark marks or scars on my body are going to show up quite well. During my two-week post op examination, my surgeon recommended cocoa butter. While doing some investigating on my end, I found all kinds of different opinions from sites. Benefits of Cocoa Butter on Scarring was one site that I stumbled upon; As well as from the Vaseline website I also found Cocoa Butter and Shea Butter Benefits: Facts and Uses. You get lots of helpful tips from both sites. I found a Vaseline Intensive Care Cocoa Glow Body Lotion With Pure Cocoa Butter on Amazon. It has pure cocoa butter in the ingredients. Get a tattoo to cover it up? Since I can’t see your reaction to this idea, I can only bet I am getting a lot of mixed reactions. My first reaction to this was “Cool!” Ever since my first tattoo back in 2004, I have been playing with the idea of getting another one. My Fibromyalgia worsening has put “a hitch in my giddy up,” for me to move ahead with my plans. My creative side can’t seem to stop looking at cool designs wondering if I should grin and bear it. I’ve spoken to other Fibro warriors who have given me food for thought on their experiences. Knowing that they were able to do it has helped some. What about covering your scars with one? My hubby was perusing Facebook one day and came across 34 Scar-Covering Tattoos With Amazing Stories Behind Them. What a neat idea to love your scars! Inside this amazing post, you’ll find all kinds of ways people have coped, accepted, then finally got imaginative with their scars. I adore image #3 One Word Next To A Spinal Surgery Scar. It says “Strength.” It embodies what purple butterflies go through every day. If I were to get one, I would consider this one. The reality soon hit me of where my scars are. They are on my tummy and lower back. For me, these are not areas I wish to have a tattoo. Before you get a tattoo, please give these a glance Body Art: What You Need to Know before Getting a Tattoo or Piercingand Tattoos: Understand risks and precautions. I don’t want to discourage you, but also want to help you be safe. For some of you, the scars you have are reminders of your life being saved. The time has come to treasure them. Even though I won’t be getting an illustration over one of my scars, I promise to show and share my tale when and if I do get another tattoo. Did you ever cover a scar with a tattoo? What does it look like? Please share your design and experience in the comment section. Thank you so much for reading my blog today. Do you want to keep abreast of my latest posts? Why not subscribe to my website? Tell your friends! Tell your friends to tell their friends! Till next time! Be well ~ Rachel
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Dear Purple Butterflies,
This is an updated blog that I posted in November 2021 in which I discussed healthy ways to take care of your skin. Here’s The Rub: When I was a teenager, I would get the occasional blemish, as most young people often do. I remember my friends were very big on laying out by the pool in the summertime and I always opted out of this activity. Being a fair skinned person, I wasn’t too keen on sitting out by the pool, even if we did have suntan lotion on. In addition to that, many members of my family had history of skin cancer, so I wasn’t about to take a chance. My Skin Concerns: It was in my mid-twenties that I noticed a change in my skin. Even with routinely washing my face, I began to break out. It also didn’t help that I would get extremely stressed out. It’s amazing what having a chronic illness can do to your completion! I looked up facial completion and fibromyalgia. While reading 16 Photos That Show How Fibromyalgia Can Affect Your Skin from The Mighty, I found that I experience a lot of random bruising, and redness/blotchiness, (in the past it was written off as rosacea), shows examples of issues I’ve experienced. A Forty Year Old Teenager? In addition to those symptoms related to Fibromyalgia, I still have trouble with occasional break outs especially around a certain time of the month. Even though I didn’t have pimples like this as a teenager, I often refer to my face as such when I don’t have a clear complexion. As a woman in her mid-fourties’ it’s rather embarrassing! Much like my suspicions with my Fibro symptoms, I have always had an idea of why this was happening. I decided it was time to finally see it in black and white. Going back to my internet homework, I discovered Hormonal Acne. Reading this branch off from www.mycleavelandclinic.org, I found answers to my questions. With all of this in mind, I took a couple of days to find a facial wash and makeup that could help me. Keeping My Face Safe: Were you aware that some beauty products can be dangerous to your health? I’m so excited to share with you all the treasures I uncovered for this very important subject! It may be July, but did you know that the entire month of November is National Skin Care Month in the U.S. In addition to this, I recently found the best website for healthy makeup to use. Environmental Working Group or EWG VERIFIED™: A New Standard for Your Health, is a new site that I stumbled upon while researching if my skin care and makeup products were still safe. EWG's Skin Deep’s site offers ratings on products including makeup, nails, face and body, personal care, hair, fragrance, babies and moms, men, and sun. For example, if you search Cover Girl foundation, it is rated anywhere from moderate hazard to high hazard. They have a great resource of helpful hints and rates suggestions that everyone can go by! Here is a link to know how Learn how Skin Deep® works. I’ve completely started fresh with new makeup products. Here is a list of my new go to’s along with the EWG rating:
How many of you already use these products? By spreading this awareness, I hope you can find everything you are looking for. Please continue to stay safe purple butterflies! Thank you for taking the time to read my blog today! If you’re enjoying my blogs, why not subscribe to my website? My blogs will go straight to your email. It’s free to sign up! Tell your friends! Tell your friends to tell their friends! Till next time! Be well! ~ Rachel Dear Purple Butterflies,
If you’re anything like me, you’re probably sick of going to doctors’ appointments, blood tests, taking medications, etc. As much as I hate to say it, for those with chronic illnesses, it just comes with the territory. I have recently found a brand-new rheumatologist to help me with my Fibro symptoms. My appointment won’t be till September. Until then, I am doing lots of internet homework to prepare for said visit. For instance, I believe I have found an actual name for my twitches and spasms that I get daily. I am anxious to see if my new doctor agrees with any of the information that I found. I am currently being treated by my Pain Management doctor for my arthritis in my neck and right arm pain. I have been given medication, at home physical therapy, and two rounds of neck injections. Let me tell you that I trust my Pain Management doctor completely. Still I’m thinking that I need a second opinion. Which is where the new Rheumatologist would come in. This is where I got the idea for a new blog. I could share all my tips and tricks that I’ve learned about finding the best doctor. As my adventure continues, I will update this blog. This list is a mixture of my own recommendation and ideas I found from www.creakyjoints.org.
2. Research: Now that you’ve found a doctor what seems awesome, do a little research on his or her background. Go to their actual medical website and look around. Look at his or her reviews. Call around to your doctors and ask if they have heard of the doctor you’re thinking of seeing. Get their opinion. 3. Insurances: Sometimes our insurances don’t want to cooperate with the doctors we want to see. I have been there many times. In times like these it makes you want to pull your hair out, right? Before you do that, try taking a few days off from your search. Then look to see who you can go to that your insurance company will accept! If you don’t have insurance, make sure to tell the doctors office. It has been my experience here within the States that you can receive a discount on your bill. This may or may not apply to other countries. Please ask before assuming they will give you a discount! Some of the advice from 9 Signs You’re Seeing the Right Rheumatologist (and 5 Signs You Might Need a New One) includes:
If you’ve been following me for a while, you know all about my botched plantar fasciitis surgery. I made the mistake of not getting a second opinion. I was sure fooled into thinking that doctor knew what he was doing. I have moved on with my life always reminding myself to never let that happen again.
My first instinct is to look for someone who is the same sex as I am. Most of the time I find it’s easier to talk to a lady doctor about what I am going though, than a man. It’s not that my male doctors don’t listen. I feel more comfortable talking to another female about my time of the month, than I would to a man.
On a personal level, this is especially important for me because my physicians aren’t always in the same hospital network.
I know I am not alone when I say that being able to see my doctor as soon as I can is definitely a plus! When offices can do this for me, it not only shows me how much they care but, it reassures me I am not just a faceless number, It goes without saying, I hope I will be with this new doctor for a long time. Once I find a good one, I hang on with a vice grip. I’d love to know of your experiences. Do you know of any ideas that I failed to mention? Let me know in the comments below. Please continue to stay safe purple butterflies! Thank you for taking the time to read my blog today! If you’re enjoying my blogs, why not subscribe to my website? My blogs will go straight to your email. It’s free to sign up! Tell your friends! Tell your friends to tell their friends! Be well! ~ Rachel Dear Purple Butterflies,
I have been a Star Wars fan ever since I was very young. Immediately I was intrigued with the force, and I wanted to be Princess Leia for a couple of reasons, one of them being so I could marry Han Solo. If you’re like me, and have been paying attention, you know the Obi-Wan Kenobi series comes out this Friday on Disney Plus. I have been anticipating this show for a long time now. It’s very exciting! Did you know that it’s the forty-fifth anniversary of the fourth installment, A New Hope? To celebrate both things, I have come up with a list combining Fibro and Star Wars. Without further ado, here is what I came up with for my list! 6 ways Star Wars has helped us with Fibromyalgia
I hope ya’ll enjoyed my Star Wars themed Fibromyalgia blog and it helped you think of things in a fun way. Did you think of anything from the trilogy that could also be applied to Fibro? I’d love to know your thoughts! As always, please continue to stay safe purple butterflies! Thank you for taking the time to read my blog today! If you’re enjoying my blogs, why not subscribe to my website? My blogs will go straight to your email. It’s free to sign up! Tell your friends! Tell your friends to tell their friends! Be well! ~ Rachel Dear Purple Butterflies,
This is an updated post from an article that I wrote to spread NATIONAL FIBROMYALGIA AWARENESS DAY information a year ago. I liked it so much that, I am reposting it with revisions from other articles I posted for the occasion. Every May 12th, I look forward to showing my support for Fibromyalgia. Participants world-wide on this day will be raising awareness for this chronic and disguised condition by hosting multiple events. Fibromyalgia Awareness Day has been around since 1998. It all came to be when Lynne Matallanax and Karen Lee Richards (the founders of the National Fibromyalgia Association), sent packets of information to national support groups inquiring help to approach U.S political leaders for this invisible illness. Lynne was finally able to get The Los Angeles County Board of Supervisors to recognize May 12th as Fibromyalgia Awareness Day! Not long after, roughly twenty-five other jurisdictions across the country followed suit. What’s so cool about this story is that this year, National Fibromyalgia Day just celebrated it’s twenty-fourth anniversary! Another article you might find helpful is Mystery of Fibro History, posted from last year as well. If you’re curious and would like to know more about FMS, the following snippet is from the National Fibromyalgia Awareness Day - May 12, 2022 article. “Fibromyalgia is a musculoskeletal disorder that causes chronic pain all over the body. Other symptoms also include fatigue, anxiety, migraines, irritable bowel syndrome, skin sensitivity, insomnia, numbness, stiffness, etc. People suffering from fibromyalgia either go undiagnosed for years or are misdiagnosed. Due to a lack of research and the difficulty in identifying the factors that cause the illness, many also believe that the disease is psychological and not real. Moreover, there is no permanent cure to relieve the sufferer.” According to The Mayo Clinic, “Fibromyalgia pain is not the same in everyone with this disorder. Some people may have extreme skin sensitivity to gentle pressure. Some may have tender finger joints without redness or swelling. Others may have significant tenderness of the muscles of the upper back and neck.” Have you ever wondered what is the latest news between Fibromyalgia and the autoimmune system? To read my blog about this, click Mindful Monday#61: Do you know Fibro? What will you be doing to help raise Fibromyalgia Awareness this year? Most of you might be familiar with this site: Fibromyalgiapatienteducation.info. This is a great reference to have if you’re wanting information. Or maybe you’re having trouble thinking of ideas on what to do for May 12. For my birthday this year (May 8th) I will choose to support Fibromyalgia research. I’ll have a link to the charity on Facebook. Hopefully my blog has given you some inspiration for May 12th. Remember this butterflies, you don’t have to scream to be heard, and even the smallest star can be seen from across the universe. I’ll leave you this week with this awesome quote: “You may encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it.” – Maya Angelou. I pray that everyone is staying safe. Thank you for taking the time to read my blog today! If you’re enjoying my blogs, why not subscribe to my website? My blogs will go straight to your email. It’s free to sign up! Tell your friends! Tell your friends to tell their friends! Till next time! Rachel Dear Purple Butterflies,
During the month of April, there are two wonderful awareness days that we all can relate to. One is the Stress Awareness Month that takes place throughout the entire month of April. Personally, I have never met anyone who hasn’t had their own experiences with stress. Why do we need to observe this day?
With all these suggestions, I can’t help but think about my fellow warriors, myself included, who battle insomnia. The idea of getting a decent night’s sleep can be almost laughable. The truth is, it’s not a joke. I don’t have to tell you that having insomnia can make the following day miserable. I would love to tell you that I sleep soundly every single night. I would be lying to you if I did. Here is a helpful website that has a listing of resources to help with stress and suicide: American Foundation for Suicide Prevention. To combat the stress awareness month, is an annual, fun event which is National Wear Your PJ's To Work Day. In case you were wondering, this day is on April 16th. Since I am my own boss and work from home, every day is national wear you pj’s to workday. Most days I do not get out of my pj’s unless I must. Obviously, it was created to enjoy yourself and have fun. Taking a step back, to breathe and having a comfortable workday can be so beneficial to all of us. So why not this year, take advantage and try spreading awareness about this day? Here are my ideas on how to observe it:
I realize some of these ideas may not work for every job. At least I hope I have given you some thoughts to work with. Now that you know more about these two awareness days, I hope you join me in adding them to my personal calendar. As I end my blog, I’ll save the best for last. While perusing through another website, I came upon Madalyn Worley | Mental Health America of Greater Dallas. World Sleep Day was last month on March 18th. Even though this observance day is technically over with, I carry its message with me all throughout the year. I have always been proud to be a Texan. After we moved back from Florida, I was reminded how lucky we were to be in a state of well-educated and caring professionals. As someone who battles stress, they have my support more now than ever! If you are not able to do one of the activities or challenges, spread the world by posting about it on social media! I will be making that my goal! As always, I’d love to hear your stories in the comments below! Please continue to stay safe purple butterflies! Thank you for taking the time to read my blog today! If you’re enjoying my blogs, why not subscribe to my website? My blogs will go straight to your email. It’s free to sign up! Tell your friends! Tell your friends to tell their friends!Be well! ~ Rachel |
About the author:Rachel Barclift, has been suffering from Fibromyalgia for many years. She went to the doctor, never finding any answers for years. She went to one doctor who told her the pain was all in her head. In 2011, she finally found a doctor that believed her! She was officially diagnosed by her rheumatologist and she was so relieved! She writes blogs in hopes to help others find positivity. |